The multifaceted role of the Epilepsy Specialist Nurse: Literature review and survey study on patient and medical Staff Perceptions

Giulia Locatelli

Publikation: Bidrag til tidsskriftReviewForskningpeer review


BACKGROUND: Epilepsy is frequently accompanied by learning, behavioural and psychological difficulties, therefore the management of this pathology extends far beyond the use of antiepileptic drugs. The specialist-nurse-service provides a multifaceted management. This study adds new points of view on how epilepsy-specialist-nurses work, the benefits they produce and their feedback.

OBJECTIVES: The study was conducted to analyse the role of the epilepsy-specialist-nurse, its competencies, its impact on patients and healthcare system and its relevance in patient and medical-staff perceptions, to give new suggestions on how it can be useful in epilepsy teams.

METHOD: Literature review to analyse epilepsy-specialist-nurse role; a quantitative research with descriptive approach to examine patients' (11) perceptions using a novel-questionnaire; applied qualitative analysis of medical staff (4) perceptions through semi-structured interviews.

RESULTS: The epilepsy-specialist-nurse has the competences to manage the epilepsy-related issues that extend beyond medications. Patients value the ability of specialist-nurses to answer their multifaceted needs, to dedicate them enough time to discuss the impact of epilepsy on everyday-life and their feelings, giving suggestions. Doctors collaborating with specialist-nurses recognize their valuable contribute. Doctors give more information on epilepsy and medication-issues: patients prefer to consult a doctor for these issues.

CONCLUSION: The holistic way adopted by specialist-nurses in addressing patients' needs is fundamental to improve patients' health and well-being. Medical and nursing ability to address epilepsy-related issues in a very similar way - in the items analysed - may reveal that specialist-nurses can provide high-quality assistance while achieving cost-savings. It is needed to develop a structured pathway that allows the progression of specialist-nursing, to define a clear job description, and to obtain government recognition.

Sider (fra-til)34-41
Antal sider8
TidsskriftProfessioni infermieristiche
Udgave nummer1
StatusUdgivet - 5 jun. 2019


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