TY - JOUR
T1 - Establishing research priorities related to osteoarthritis care via stakeholder input from patients
AU - Puggaard, Rikke Steffensen
AU - Ingelsrud, Lina Holm
AU - Jacobsen, Stine
AU - Kjellberg, Jakob
AU - Bandholm, Thomas
AU - Hölmich, Per
AU - Boesen, Mikael
AU - Bliddal, Henning
AU - Skou, Søren T
AU - Schrøder, Henrik Morville
AU - Larsen, Susan Weng
AU - Møller, Anne
AU - Ziegler, Connie
AU - Troelsen, Anders
N1 - Articles published in the DMJ are “open access”. This means that the articles are distributed under the terms of the Creative Commons Attribution Non-commercial License, which permits any non-commercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited.
PY - 2021/1/26
Y1 - 2021/1/26
N2 - INTRODUCTION: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA).METHODS: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis.RESULTS: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For "treatment", we identified seven subtopics. Out of all topics and subtopics, "pain management" was the most frequently highlighted. All predefined topics were rated as "very important" or "somewhat important" by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals.CONCLUSIONS: We identified research topics that were important in the eyes of people with OA and found that "pain management" was particularly emphasised.FUNDING: none.TRIAL REGISTRATION: not relevant.
AB - INTRODUCTION: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA).METHODS: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis.RESULTS: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For "treatment", we identified seven subtopics. Out of all topics and subtopics, "pain management" was the most frequently highlighted. All predefined topics were rated as "very important" or "somewhat important" by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals.CONCLUSIONS: We identified research topics that were important in the eyes of people with OA and found that "pain management" was particularly emphasised.FUNDING: none.TRIAL REGISTRATION: not relevant.
M3 - Article
C2 - 33543702
SN - 2245-1919
VL - 68
JO - Danish medical journal
JF - Danish medical journal
IS - 2
M1 - A09200683
ER -