Establishing research priorities related to osteoarthritis care via stakeholder input from patients

Rikke Steffensen Puggaard, Lina Holm Ingelsrud, Stine Jacobsen, Jakob Kjellberg, Thomas Bandholm, Per Hölmich, Mikael Boesen, Henning Bliddal, Søren T Skou, Henrik Morville Schrøder, Susan Weng Larsen, Anne Møller, Connie Ziegler, Anders Troelsen

Publikation: Bidrag til tidsskriftArtikelForskningpeer review


INTRODUCTION: Stakeholder involvement in research is emphasised to improve relevance. We aimed to identify, define and prioritise important research topics seen from the point of view of people with osteoarthritis (OA).

METHODS: We invited 1,315 members of the user panel of the Danish Rheumatism Association to answer an electronic survey that included; 1) an open-ended question about important research topics (free-text response option), 2) 15 predefined research topics to be rated for importance and 3) predefined topics grouped into four categories in which the most important was prioritised. Free-text responses were analysed using content analysis.

RESULTS: Out of 850 (65%) respondents, 483 had OA (mean ± standard deviation age 60.3 ± 10.2 years, 91% female). From the free-text responses, we identified seven research topics; 1) diagnostics, 2) prevention, 3) side effects, 4) treatment, 5) aetiology, 6) being young with OA and 7) quality of life. For "treatment", we identified seven subtopics. Out of all topics and subtopics, "pain management" was the most frequently highlighted. All predefined topics were rated as "very important" or "somewhat important" by more than 75% of the respondents. The top prioritised topics within each category were 1) improving the diagnosis, 2) individualised treatment, 3) shared decision-making and 4) cross-sector collaboration and collaboration between professionals.

CONCLUSIONS: We identified research topics that were important in the eyes of people with OA and found that "pain management" was particularly emphasised.

FUNDING: none.


Antal sider8
TidsskriftDanish medical journal
Udgave nummer2
StatusUdgivet - 26 jan. 2021

Bibliografisk note

Articles published in the DMJ are “open access”. This means that the articles are distributed under the terms of the Creative Commons Attribution Non-commercial License, which permits any non-commercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited.


Udforsk hvilke forskningsemner 'Establishing research priorities related to osteoarthritis care via stakeholder input from patients' indeholder.